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PGHD Guide: Patient Generated Health Data in 20 Q&A

Explore the essentials of Patient Generated Health Data (PGHD) in our detailed 20 Q&A guide. Learn its benefits and impact on healthcare systems.

patient health data

"Health care is becoming more digitized and consumer oriented. It’s not an overnight change, but more like how summer turns into fall – gradual yet very perceptible." - Greg Scott, Principal, Deloitte Consulting

1.What is PGHD?

2. What does PGHD include?

3. Is PGHD a new concept?

4. What consumer technologies provide PGHD?

5. What medical devices provide PGHD?

6. What are the steps that lead to the creation of PGHD?

Data acquisition

Data transmission and storage

Data analysis

Feedback and decision-making

7. How is data acquired?

8. How is data transmitted and stored?

9. How is data analysed?

10. What are the digital health categories that have received the most funding?

11. Which mHealth apps are expected to dominate the market by 2025?

12. Is the global remote patient monitoring devices market size set to grow in the coming years?

13. How much data do patients generate?

14. How does PGHD change the patient-clinician relationship?

15. Under the present circumstances, can we talk about PGHD literacy?

16. What are the main benefits for patients?

Enhanced patient care: clinicians can make quicker and more informed decisions

Improved patient outcomes: allows clinicians to make well-informed care plans, thus preventing potential complications

Improved coordination between specialty care teams

Enhanced patient awareness, engagement, satisfaction, and sense of autonomy

Improved chronic and preventive care management

17. What are the main benefits for clinicians?

Provides clinicians with valuable data that would be impossible to obtain otherwise

Provides a clearer and more accurate vision of the patient’s overall health status

Provides valuable insights into disease causes and risks

Reduced costs by lowering readmission rates and reducing errors

Plays a crucial role in public health surveillance and clinical research

18. What are the main PGHD-related challenges?

Difficulties to integrate PGHD into clinical workflows due to a series of factors such as lack of proper training in its usage, huge variety of interfaces and data types, deficient data integration and management across systems, etc.

Concerns about personal health data privacy, security, and secondary use

Lack of standards for wearables and mHealth apps that may lead to concerns about the accuracy of the registered data

Limited – and in some cases even non-existent – access to broadband Internet (e.g. rural areas), expensive technology, etc.

Liability for medical decisions based on PGHD

The huge amount of data may turn into a burden for clinicians and generate unrealistic expectations from patients’ part

19. What requirements should PGHD meet to support decision making?

Accurate

Complete

Accessible

Understandable

20. Can PGHD revolutionize healthcare?

To sum up…

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